Around 1,000 patients diagnosed with rare diseases are registered with the Centres of Excellence, Minister of State for Health and Family Welfare Prataprao Jadhav informed Lok Sabha on Friday.In a written reply, he said Rs...
Dr. L Swasticharan, Addl. DDG with DGHS, health ministry, has said that ministry is actively considering establishing a specialized Technical Expert Group focusing on Spinal Muscular Atrophy, a rare and genetically inherited...
Advocacy groups for rare disease patients have urged Prime Minister Narendra Modi and BJP manifesto committee head Rajnath Singh for including sustainable funding support for such patients in the party’s Lok Sabha poll...
