Health Ministry to set up expert committee on Spinal Muscular Atrophy
Dr. L Swasticharan, Addl. DDG with DGHS, health ministry, has said that ministry is actively considering establishing a specialized Technical Expert Group focusing on Spinal Muscular Atrophy, a rare and genetically inherited...
Include funding support for rare disease in Poll Promises: Advocacy group to PM
Advocacy groups for rare disease patients have urged Prime Minister Narendra Modi and BJP manifesto committee head Rajnath Singh for including sustainable funding support for such patients in the party’s Lok Sabha poll...